Not the best xmas ever

UPDATE: For people searching for Primary Sclerosing Cholangitis blogs, I’ve got a dedicated PSC blog called Pesky PSC (which doesn’t seem to have gotten to Google yet). Go have a look!

Well, it didn’t take long for my blog to hit a snag!  My last post was over a month ago, mainly because I haven’t done anything bikey in 2 months.

The reason for the lack of cycling isn’t laziness, or even the weather – it’s due to a medical condition that I’ve been cultivating since the start of the year.  It’s still being diagnosed, but the doctor’s currently think that I’ve got Primary Sclerosing Cholangitis – inflamation and damage of the bile ducts that connect the liver to other stuff. The overall effect of this is that my liver is slowly being killed by my own immune system, and I’ll probably need a liver transplant in a few years time.  The more direct effect is that when my immune system fights something, it also fights my liver, which leads to cholangitis..

Imagine the worst hangover you’ve ever had..  the pounding headache, the nausea, the bloodshot eyes, lack of apetite, photosensitivity, the feeling of still being a bit inebriated.. now add liver/spleen/gall bladder pain, eyelids that feel like sandpaper to your eyes, and skin the colour of custard. Now imagine that lasting for a week.  Remember that the lack of apetite stops you eating, so you’re also suffering from malnutrition, and your breath stinks of ketones because you’ve been burning your own fat reserves!

That’s how I spent my Christmas..

I’m still recovering from it, even now.  My skin’s almost back to normal colour, and my innards have stopped hurting, but still I can’t stomach most types of food, so I’m living off of fruit and pot noodles (not sure why i can eat those!).  I ate through 5kg of body fat over the past 2 weeks, but it seems that that was my insulation layer, as I’m now really feeling the cold.  I haven’t got the energy to cycle 7 miles anymore.  I barely managed the walk into work without getting wibbly legs!

But I will recover (until the next one), and I’ll be quite glad to be back on the bike, I can tell you!  Trains are such an undignified method of transport!